Wednesday, June 11, 2014

The good, the bad and the ugly

THE GOOD
Joe is really doing great.  He is eating a little better and they have taken him off fluids a few times.  He has had a great attitude and keeps bringing smiles to everyone's face.

I must say that I have been appreciating the clean and air-conditioned air here at PCH.  My allergies have been non-existent and I have been sleeping better than usual despite the nightly interruptions and chair/bed thing.

THE BAD
Have mercy.  ANC of 70 today (needs a 200 Absolute Neutrophil Count).  I don't know how families do this for months at a time.  How do we stay busy?  Crafts, books, toys, movies, drawing, puzzles, and visitors. We have even attempted puzzles picture side down, repeated a movie in a different language, and make dragon claws out of medical tape and paper.  This is great training for an Arizona summer.  :)

THE UGLY
Josiah had the choice to repeat his viral test today and possibly be cleared to roam the halls and visit the playroom.  He decided he would rather stay in his room than have that test done.  They stick swabs WAY up your nostrils and twist for 10 seconds.  



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