Tomorrow will be hard for Josiah. He will wake up early and eat some cereal. Then he will fast until his lumbar puncture in the early afternoon or until we find out his blood test dictates that he is still not ready to start his next phase of treatment. Either way, the hardest parts of his day are getting his port accessed and de-accessed. This brave little guy has to unzip his shirt and let someone poke a needle into a port that lies beneath his skin. He had a spell where he could do it like a rock star, but lately he has been really scared and it is even worse when he is hungry. The staff at Phoenix Children's are awesome and patient, but it is stressful for all of us when he is really scared. Then we wait for results. If his ANC is above 750, he will get two types of chemo, then head over to the hospital for a lumbar puncture. Waking up from anesthesia is generally rough, except for the one time he was cracking jokes with the nurses in recovery. He is hungry because he couldn't have lunch, but not interested in eating because of the anesthesia and chemo he's had. He is tired because he got about 30 minutes of sleep when he would normally nap for 2-3 hours at that time. Then they have to take off his dressing and pull the needle out of his port. If his ANC is high enough, they might let him leave it in over night so we don't have to access it again in the morning when he comes back for more chemo. All for now, mama needs to get some sleep.
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